Before Charlotte left the neonatal unit she had to do a car seat challenge. This was to make sure she could tolerate being in the car seat for the journey home, without her breathing being affected. Continue reading “Life after NICU – out & about”
Bringing Charlotte home was one of the most exciting yet daunting events of my life.
My first weeks at home with Charlotte were spent lost in a confused array of emotions. I was filled with love, joy and worry for Charlotte alongside pain, heartache and grief for Esme. Continue reading “Life after NICU – Homelife”
When Charlotte and Esme were still in hospital and a nurse explained to me that some babies go home on oxygen, I freaked out. At the time, I told the nurse that I would rather stay in hospital until their lungs were strong enough to breathe by themselves. Continue reading “Home on oxygen”
This is by no means ‘one list suits all’ but it is how we survived the battle of the neonatal unit.
Continue reading “A guide to surviving the Neonatal Unit”
In the Neonatal Intensive Care Unit (NICU), infants are physically separated from their parents and this often has an impact on the physical, psychological, emotional health of both the parents and the infants. Family Centred Care is an approach to planning and delivery of health care that encourages greater parent involvement in their infants’ care. However, parents generally remain relegated to a supportive role in the NICU, and the majority of care for the infant is provided by NICU professionals. Continue reading “Family Integrated Care”
At the end of September the outreach nurse came to see me and said that we would now be looking at the next stages of preparing Charlotte to go home. I never thought I would ever hear anyone say that. It was a distant dream. Continue reading “The home straight”
I have written all my blog from memory and surprised myself that I could remember every day, sometimes every hour, every minute. As I wrote I relived every painful second and experienced the heart palpitations, the dizziness, the sickness and the fear. Continue reading “My Warrior”
Monday,12th September, 2016
After returning from the hospital that afternoon, I gathered all the things I had collected to decorate the village hall and walked down, ready to meet my girlfriends, Connor and my sister. Continue reading “Esme’s Day”
‘Connor and I focused all our energies on Charlotte. We were now a family of three. I struggled with the mornings and evenings and often wandered around the house feeling lost and empty. Continue reading “Finding our feet”
Friday 2nd September
Driving to the hospital, I started to make arrangements for Esme’s funeral. Continue reading “The proudest walk of my life”